Patient & Healthcare Advocate Impact Study


DISCLAIMER: In the development of, data collection, analysis, and reporting from the [survey], the Coalition of Health Care Advocacy Organizations (CHCAO) and its member organizations (GNA, HAX, NAHAC, and PACB) have no affiliation with any commercial healthcare entity. All data collected is the exclusive and private property of CHCAO. The sole purpose of the survey is to collect valid data to help demonstrate the value of patient and health care advocates. The survey content was developed by an all-volunteer committee comprised of CHCAO members along with market researcher Matt Toresco of The Advocate. CHCAO and its member organizations will use results from the survey to help inform healthcare professionals, regulatory bodies, and the public about the value of patient and health care advocacy.

What is the impact of a patient or health care advocate being involved in patient care?

We encourage your participation in an online survey to measure the impact and experience of having Advocates* assist clients and serve as part of the care team. Completion of this confidential survey should take approximately 10-minutes.

The deadline for completion of the survey is December 20th, 2022.

*See FAQ section for more detail

The deadline for completion of the survey has been extended to January 20th, 2023.

The survey can be completed in English or Spanish. Use the drop-down menu in the upper right corner of the survey to make a language change.

To maximize the value of the acquired information, we encourage you to pass the Survey on the Impact of Patient and Health Care Advocacy to individuals, organizations, and institutions associated with professional patient and health care advocates. We encourage the survey to go to clients and patients as their perspective is critical.

Frequently Asked Questions

What kind of Advocates is the survey referring to?

The reference to advocates in this survey includes but is not limited to health and health care advocates, patient advocates, patient navigators, health or patient advisers, care managers, and case managers, as well as those who work on behalf of communities, consumers, and family caregivers (including advocacy on legislative and health policy initiatives). Advocates may work independently, in a medical setting, or on behalf of communities or disease-specific populations across organizations and agencies.

What is the Origin Story for the Survey?

This survey was initiated by the Coalition of Health Care Advocacy Organizations (CHCAO), with volunteer support by market researcher Matt Toresco of The Advocate. CHCAO recognizes a key driver in advancing the profession is actionable data demonstrating the value patient and health care advocates bring. The Advocate is an ally in patient-centric work in alignment with the mission and vision of CHCAO. There is no commercial sponsorship associated with the survey and all data is the private and confidential property of CHCAO.

How will the data be used?

Findings from the survey will be shared in the Spring of 2023 with the goal of providing patient and health care advocates actionable data to inform and support their work. CHCAO and its member organizations will use the data in our efforts to advance the profession of patient and health care advocacy through collaborative leadership.